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Hemophilia patients have higher rates of mental distress, with physical symptoms like pain and infections playing a role, a ...
Columnist Joe MacDonald shares his practical advice for how to help a child define their identity beyond their hemophilia diagnosis.
Columnist G Shellye Horowitz shares tips you can use to support a loved one who may be feeling anxiety due to concerns about hemophilia.
Columnist Jennifer Lynne knows from experience the importance of a hematologist's input when mulling surgery with her bleeding disorders.
Columnist G Shellye Horowitz was nervous to visit a new doctor, but says she felt reassured by three comments the ...
Roctavian zeroes out bleeds and sustains factor VIII levels for up to five years, with most patients staying off prophylaxis, ...
It was eye-opening for columnist G Shellye Horowitz to learn the correlation between obesity, joint pain, and bleeds.
The dance in our kitchen hadn’t stopped; it’d only paused. As Julian passed me a warm tortilla, Joe poured a glass of tea, and Caeleb grabbed a few warm cookies, I stepped back into the rhythm of the ...
For columnist Alliah Czarielle's husband, hemophilia demands a slow and intentional life. It's not glamorous, but there is much hidden value.
Adults with hemophilia who switched from standard to extended half-life replacement treatment products had fewer bleeding episodes.
Even with two diagnosed bleeding disorders, columnist Jennifer Lynne still hesitates to identify a bleed due to years of medical dismissal.
Columnist Joe MacDonald was happy to see his son solving a problem without any prompting — a sign that he's ready to live independently.
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